Ashe Background

Ashe Background

Thursday, June 27, 2013

Red, White and Blue

 Are you getting excited for the 4th of July???

  We are!!





Saturday, June 22, 2013

Father's Day

        I don't think I can ever accurately describe how wonderful a dad Eric is.  Seriously, he's one of a kind guy and I'm glad he's mine.  For Father's Day we took Eric to a restaurant near the river and enjoyed some delicious seafood while the kids played in the sand.  It was a great day!









Friday, June 21, 2013

Last day of Pre-K and 1st grade!

Sadly we've reached the end of another great school year, but thankfully summer break has only just began. I think it was great year and the kids seemed to have enjoyed their first year at this new school.  Gracie and Ethan both had parities to celebrate the end of the year, but I doubt the parties were the highlights of the week because all they could keep saying was "NO SCHOOL!!"  Here's to a fabulous summer full of memories and togetherness!


Gracie with her teachers
Getting her Pre-K diploma
Gracie and her buddy Addyson

Ethan with his teacher
Summer banner
Celebratory throwing the back pack in the air.

Ice cream treat after school!


Summer Bucket List

video

Thursday, June 20, 2013

Room Upgrade


Ethan is getting older and he decided that his room needed an upgrade.
He wanted an older version of his previous style. 
He passed on a few of his items to Eli so we had to find more items to fill the space up.
I think he is getting too big too fast! 






Eric built the desk!

Wednesday, June 19, 2013

Chow Time

Eli has officially started solids and he's already a huge fan!
Our little chunkster has some of the most bite worthy fat rolls around, 
but we may be seeing some more very soon. 

We love baby fat rolls...I mean who doesn't ?!







Friday, June 07, 2013

Sam I Am


video


I didn't believe Eric when he said that Gracie read an entire Dr. Seuss book to him, but I should've known better than to doubt Miss. Gracie. Needless to say, I think she is ready for kindergarten.

Tuesday, June 04, 2013

Thoughts, realizations & confessions

   While Eli was in the hospital, I was able to get some reading in during his nap times and late at night when sleep was nowhere to be found.  I read The Art of Hearing Heartbeats by Jan-Phillip Sendker.  I really enjoyed it! It was a great read, a little unrealistic, but still a nice thought.  My favorite quotes were, Life is a gift of riddles in which suffering and happiness are inextricably intertwined. Any attempt to have one without the other was simply bound to fail....and...It would be much worse to expect good from other people, only to be dissapointed when they didn't measure up to our high expectations. That would lead to resentment and contempt for humanity.


   Having a baby is life altering.  I think that is common knowledge and people pretty much know that life is going to change, but some just don't know how drastic. I remember answering that same old question "When are you going to have kids?" with the most typical answer, "When we are financially stable"  I pretty much laugh at that answer now. While it is a very legitimate answer and one that should be taken seriously, it isn't what I would think high on the list.  Knowing what I know now I would change my answer to, "When we're emotionally, physically and mentally ready!"  Being financially ready is important, but I think being physically able to function on no sleep, emotionally ready to endure hospital visits and mentally ready to accept that one of the many balls you are throwing in the air may just fall ranks higher on my list.  Money is important, but health; mental or physical is essential.


   While on the topic of having a baby, I think that every baby should come from the hospital with unlimited prescriptions of ear infection antibiotics, pink eye drops and albuterol.  I can't believe how much I have used these items over and over again these past 7 years and always seem to need them in the middle of the night.  I know its a long shot, but in my perfect world these would handed out with every baby. Who am I kidding?! In my perfect world every kid would also come with a maid and a chef!


   All of my children, except Lexie are cuddlers while awake. However, when they are ready to sleep they prefer not to be touched.  From birth they have been placed in the crib while awake and have soothed themselves to sleep. With Ethan I made the mistake of pushing the whole rocking him to sleep method and boy would he fight me. I thought that was just how you put babies to sleep, but quickly realized not all babies like to be rocked . Gracie, Lexie, and Eli are exactly the same way.  However, whenever Lexie gets sick, she needs to cuddled. That seems to be the only way to console her when she's crying or recovering from a seizure. I learned at the last hospital visit that Eli is completely opposite.  He doesn't want to be touched and will complain until he's placed back in the crib.  Even the nurses would comment on how he was like a grumpy old man and preferred to be left alone.  It is crazy because when Eli isn't sick he is very pleasant and would be perfectly content being held all day.

     You know you are in our house when you happen to walk by the sink and there is a handful of syringes in the sink.  I always ask for more whenever I get the prescriptions refilled because they are in constant use around our house, but it never seems like we have enough.  I wonder if I just need to find an online company that sells them in bulk. I'm sure I would find a couple in the yard if I were to look hard enough. Darn kids....


    I love how I get to use a social network like Facebook to connect with family and friends on a daily basis.  However, I often wonder if I shouldn't post half of the stuff that I do.  Please don't assume that there are any inappropriate post or language, just that I wonder if people get tired of being so well educated about our life with two special needs kids.  I'm pretty sure I didn't realize when we had Lexie how it would be life changing for people outside our immediate family as well.  Our family and friends have involuntary become associated with hydrocephalus or it's effects on a daily or weekly basis.  It doesn't affect their daily life, but I'm sure it may become tiring to constantly see the post describing the hurdles we face or the things that our children have already had to endure at such a young age. Don't get me wrong, I post all the great times as well, but this past year has been a trying one and sometimes the bad times just may overshadow the good.  I'm all for hydrocephalus awareness, but a little part of me just wonders if I could've spared some of our family and friends.  Let them continue to to live in a world where unless there is drug abuse or some sort of medical malpractice, babies are just born healthy.  It's naive and I agree not helpful, but I'm not going to lie when I say I miss that world.  I've been thinking I should just start a private group with immediate family members where I would post ER visits, hospital stays, and/or major events.  It just seems less imposing on everyone else.



However, I don't view this blog as imposing because you came here to get a peek into our lives at this moment.  Therefore, I'm going to give you a peek into our daily schedule. I choose this day because Eli was in the hospital and it pretty much described how chaotic our day can get when we have a little one in the hospital.

4:45 AM Wake up at the hospital, brief the nurses on the feeding schedule and when Eric will be getting there.
5:00 AM Leave hospital
5:45 AM Arrive home, take a shower and get ready, feed kids breakfast, pack lunches, and start the laundry
9:00 AM Drop Ethan off at school and the girls and I immediately leave for the hospital.
10:00 AM Arrive at the hospital.. I feed Eli and Lexie while Gracie eats her lunch.
12:00 AM Leave hospital to get Gracie to school on time.
1:00 PM Drop Gracie off at school
1:30 PM Arrive home. Put Lexie down for a nap and I continue the laundry game while eating my lunch.
3:50 PM Pick Ethan and Gracie up from school.
4:00 PM Meet up with Eric for the old switcheroo of children.
5:00 PM I'm back at the hospital and my day ends here until the next morning when it all begins again.

Thankfully though on the next day there will be no laundry to do!

Monday, June 03, 2013

School Carnival

Our school hosted a Carnival last week and 
we had a great time playing the games while socializing with our friends.



Here Gracie is with her teacher! 
Any teacher that can act silly gets an A+ in my book!
She was coloring the kids hair.






These are 3 out of the 4 Pre-K BFF's

Sunday, June 02, 2013

Tiger to Wolf

Here are some pictures from Ethan's Cub Scout advancement ceremony.  He really enjoys his Cub Scout troop and I know he's looking forward to next year now that he is a wolf.  He's made such good buddies with his fellow scouts and I love how the Cub Scouts help each boy find their moral compass.