While Eli was in the hospital, I was able to
get some reading in during his nap times and late at night when sleep
was nowhere to be found. I read The Art of Hearing Heartbeats by
Jan-Phillip Sendker. I really enjoyed it! It was a great read, a little unrealistic, but still a nice thought. My favorite quotes were,
Life is a gift of riddles in which suffering and happiness are inextricably intertwined. Any attempt to have one without the other was simply bound to fail....and
...It would be much worse to expect good from other people, only to be dissapointed when they didn't measure up to our high expectations. That would lead to resentment and contempt for humanity.
Having a baby is life altering. I think that is
common knowledge and people pretty much know that life is going to change, but some
just don't know how drastic. I remember answering that same old question
"When are you going to have kids?" with the most typical answer, "When
we are financially stable" I pretty much laugh at that answer
now. While it is a very legitimate answer and one that should be taken
seriously, it isn't what I would think high on the list. Knowing what I
know now I would change my answer to, "When we're emotionally,
physically and mentally ready!" Being financially ready is important,
but I think being physically able to function on no sleep, emotionally
ready to endure hospital visits and mentally ready to accept that one of
the many balls you are throwing in the air may just fall ranks higher
on my list. Money is important, but health; mental or physical is
essential.
While on the topic of having a baby, I
think that every baby should come from the hospital with unlimited
prescriptions of ear infection antibiotics, pink eye drops and
albuterol. I can't believe how much I have used these items over and
over again these past 7 years and always seem to need them in the middle of the night.
I know its a long shot, but in my perfect world these would handed out
with every baby. Who am I kidding?! In my perfect world every kid would
also come with a maid and a chef!
All of my children,
except Lexie are cuddlers while awake. However, when they are ready to
sleep they prefer not to be touched. From birth they have been placed
in the crib while awake and have soothed themselves to sleep. With Ethan
I made the mistake of pushing the whole rocking him to sleep
method and boy would he fight me. I thought that was just how you put
babies to sleep, but quickly realized not all babies like to be rocked .
Gracie, Lexie, and Eli are exactly the same way. However, whenever
Lexie gets sick, she needs to cuddled. That seems to be the only way to
console her when she's crying or recovering from a seizure. I learned at
the last hospital visit that Eli is completely opposite. He doesn't
want to be touched and will complain until he's placed back in the
crib. Even the nurses would comment on how he was like a grumpy old man
and preferred to be left alone. It is crazy because when Eli isn't
sick he is very pleasant and would be perfectly content being held all day.
You know you are in our house when you
happen to walk by the sink and there is a handful of syringes in the
sink. I always ask for more whenever I get the prescriptions refilled because they are in constant use around our house,
but it never seems like we have enough. I wonder if I just need to find
an online company that sells them in bulk. I'm sure I would find a
couple in the yard if I were to look hard enough. Darn kids....
I
love how I get to use a social network like Facebook to connect with
family and friends on a daily basis. However, I often wonder if I
shouldn't post half of the stuff that I do. Please don't assume that
there are any inappropriate post or language, just that I wonder if
people get tired of being so well educated about our life with two special
needs kids. I'm pretty sure I didn't realize when we had Lexie how it
would be life changing for people outside our immediate family as well.
Our family and friends have involuntary become associated with
hydrocephalus or it's effects on a daily or weekly basis. It doesn't affect their daily
life, but I'm sure it may become tiring to constantly see the post
describing the hurdles we face or the things that our children have
already had to endure at such a young age. Don't get me wrong, I post
all the great times as well, but this past year has been a trying one
and sometimes the bad times just may overshadow the good. I'm all for
hydrocephalus awareness, but a little part of me just wonders if I
could've spared some of our family and friends. Let them continue to to
live in a world where unless there is drug abuse or some sort of
medical malpractice, babies are just born healthy. It's naive and I
agree not helpful, but I'm not going to lie when I say I miss that
world. I've been thinking I should just start a private group with immediate family
members where I would post ER visits, hospital stays, and/or major
events. It just seems less imposing on everyone else.
However, I don't view this blog as imposing because
you came here to get a peek into our lives at this moment. Therefore,
I'm going to give you a peek into our daily schedule. I choose this day
because Eli was in the hospital and it pretty much described how chaotic
our day can get when we have a little one in the hospital.
4:45 AM Wake up at the hospital, brief the nurses on the feeding schedule and when Eric will be getting there.
5:00 AM Leave hospital
5:45 AM Arrive home, take a shower and get ready, feed kids breakfast, pack lunches, and start the laundry
9:00 AM Drop Ethan off at school and the girls and I immediately leave for the hospital.
10:00 AM Arrive at the hospital.. I feed Eli and Lexie while Gracie eats her lunch.
12:00 AM Leave hospital to get Gracie to school on time.
1:00 PM Drop Gracie off at school
1:30 PM Arrive home. Put Lexie down for a nap and I continue the laundry game while eating my lunch.
3:50 PM Pick Ethan and Gracie up from school.
4:00 PM Meet up with Eric for the old switcheroo of children.
5:00
PM I'm back at the hospital and my day ends here until the next morning
when it all begins again.
Thankfully though on the next day there will be no laundry to do!