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This blog gives our family and friends a chance to be involved in our lives and watch our children grow. We have been blessed with four beautiful children; Ethan, Gracie, Lexie & Eli. Lexie and Eli were both born with Hydrocephalus. Siblings with Hydrocephalus is rare, yet not unheard of.
Ashe Background
Friday, November 13, 2015
Thursday, November 12, 2015
Temporary teachers, everlasting triumphs.
I was annoyed. I
wasn’t mad yet, I was just annoyed. I stood
at the window waiting for the new therapist to show up. She was twenty minutes late. Lexie, only three months old at the time,
wasn’t going to be awake much longer.
This was prime therapy time and we had no therapist. I remember calling her and leaving a short
and cold message. Little did my naïve,
inexperienced self, understand at the time that ECI therapists are driving from
one house to another helping more families than what’s humanly possible. They’re understaffed and underpaid. I will spare you the political rant, but I’m
shocked how little I knew of Early Intervention programs. Out of sight, out of mind. Anyway, back to this visit. I was nervous and very skeptical. How can they teach me to teach her? Why even bother? Her doctors are pretty
convinced that she is a lost cause. The
therapist finally showed up, apologized more than what was needed and jumped
right in. She kindly explained that it
was going to be a lot of work for her and us, but we would start out small and
work our way up. It sounded daunting and
I fully admit that there was no way I saw Lexie reaching the goals that we set
for her. Goals that any three month old
should’ve been effortlessly doing by now.
I had no idea how much therapy would become a consistent part of our
lives. Between the weekly visits and the
constant struggle to make therapy a daily chore, not to mention the constant
medical appointments on top of those tasks, it didn’t sound fair for a family
that was still in shock and trying to put themselves back together.
Fast forward 5 years and 10 months of our family being
enrolled in ECI.
Eli has officially aged out of ECI and is now attending
school where he will continue to receive therapy. Watching the last therapist walk out of my
door for the last time hit me like a bulldozer.
I actually felt hurt and somewhat abandoned. I was shocked that I felt that way and I
remember tearing up. Even though we just
moved to Alabama, Eli had only seen this therapist twice before he was released
from ECI. It wasn’t necessarily her as, a
person, that I would miss, but it was what she represented and all of the therapists
that came before her. I was never
prepared to fall in love with these people.
How much I would rely on their experience and expertise. How much I would enjoy their overwhelming
love and acceptance for my children.
They became my weekly counselors and my support team. They made me laugh and cry more times than I
can count. They let me into their lives
as well. I know their hopes and their
personal struggles. They felt
comfortable around me and I felt the same around them. They accepted my family. They essentially became my family. I’m not sure they fully understand the
profound presence they left. I think
they view it as only the profession they chose, but I view it as that and so
much more. They made our lives richer
and the crazy thing is we have a horrible brain condition and developmental
delays to thank for that. Yes, it felt
weird typing that, but it’s the truth.
Dear you know who,
It takes a special person to be a teacher. Although therapist don’t teach in traditional
classrooms, therapists are teachers who provide our children with the basic
building blocks to be successful in life.
In our case, those building blocks are seemingly simple tasks like
learning to eat, roll over, crawl and walk.
Like traditional teachers, I don’t think therapists get what’s owed to
them. You invest so much into your
kiddos and celebrate every triumph as if they were your own children. Whether it’s from thinking of new and
different ways to accomplish a goal to reading each child’s personality and
finding what makes them tick, you give a
lot and aren’t recognized nearly enough.
You know what each child is capable of and it’s often much more than
their doctors and even their parents expect for them to ever achieve. I consider myself lucky that I get to see
you, incredible individuals, in action. I can't even imagine what you see and how you emotionally process it when a child is referred to you due to an unfortunate incident. If I had my choice, your workload would be cut in half and your salaries
doubled. Unfortunately, despite how
opinionated I am (Let’s not try to act like you’ve never noticed), the
government has failed to share my point of view. Until we see eye to eye on this matter,
please accept my sincerest gratitude, appreciation and the Ashe Hero
Award.
Yes, it’s just a fictitious award, but it represents so
much more.
Thank you
The Ashe Family
P.S. Thank you for
always supporting my Pinterest addiction and ignoring the random cuss words
that sometimes escaped my mouth. It’s a
hard habit to break.
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