We joined some good friends of ours for a water-filled weekend at Great Wolf Lodge! The kids were super excited and have been counting down the days for some time now. We all couldn't wait for the fun to begin. We ate a ton of junk food, rode on a ton of rides, and enjoyed the company of great friends! Great Wolf Lodge never dissapoints! As we were packing up to go Miss Lexie had a seizure. She looked perfectly normal that morning, but as the morning progressed, her demeanor took a turn for the worse. Unlike her last seizure, she was coherent during this one. We ended our trip at the ER, but thankfully she has made a full recovery. By the end of that weekend we all were ready to get back home. That was enough excitement to last us for awhile.
This blog gives our family and friends a chance to be involved in our lives and watch our children grow. We have been blessed with four beautiful children; Ethan, Gracie, Lexie & Eli. Lexie and Eli were both born with Hydrocephalus. Siblings with Hydrocephalus is rare, yet not unheard of.
Ashe Background
Tuesday, April 23, 2013
Friday, April 19, 2013
6 months already?!
I can't believe it! Eli is growing way too fast and sadly it doesn't seem like that's going to change. He's such a sweetie with a timid yet playful personality. He's perfectly content being held or sitting on our laps and has the cutest giggle when being smothered by our kisses. His big brother and sisters adore him. Sometimes they're a little too forceful with their love, but I think he knows they have good hearts. Eli is still trying to master picking up his head while on his tummy, and has made great progress over the last couple of months, buts still prefers laying on his back. He's still rocking his signature side-hawk which I think suits him. His chubby cheeks beg to be kissed and we all take our turns happily. Don't you agree?!
Sunday, April 07, 2013
Fort Ashe Day III
It's spring break here so in keeping with tradition we had our Fort Ashe Day! The kids got in their dress up and "helped" me assemble the fort. We read books, played games, constructed crafts and lounged. It's still as much fun as I remember. I should've taken a picture of the awesome horse I colored. The kids were fighting over it! Yup, I'm that kind of artist where my pictures are in high demand around here. HA!
I wonder when that day will come when they annoyingly say, "Ughh, I think I'm to just going stay in my room instead." Thankfully that is still is a ways off (I hope) so we enjoyed playing today. I was able to get a couple of pics and some video before my camera died. You would think the flashing red light would of been enough of a notice, but I tend to look past those things. Ooops!
Lunch time! Their choice, so pizza and fruit with dyed 7up!
I was trying to take a picture of just Eli, but it kills Lexie not to hover.
I told her no which lead to this picture........
Can we say a bit too dramatic?! So I told her fine which lead to this picture........
and then finally to this picture!
When it comes to Eli, Lexie has the final word or the final open mouthed kiss.
Either one works!
I recorded the kids reading to me. Gracie was upset because she had to go last.
I recorded the kids reading to me. Gracie was upset because she had to go last.
Tuesday, April 02, 2013
Hoppy Easter!!
These pictures are from the Easter Eggstravaganza that was thrown two weeks ago by the squadron spouses. It was really cold and I thought the kids were going to say forget about it, but there's nothing like an egg hunt to keep them motivated. However as soon as the egg hunt was over, we all were running for the car. Brrr!

Time for the hunt!!

Lucas, Ethan and Gracie
These pictures are from Easter Sunday! The kids were ecstatic which seems about right when you are the one that gets all the cool gifts. Ethan even wrote the Easter Bunny a note and left carrots in his basket. Of course Gracie wasn't going to be left out so she made sure her basket as well as Lexie's were stocked with carrots. Eli decided to go against the basket tradition and relied on his good looks and charm. He was rewarded with an outfit and a pair of shoes!
Side note- I KNOW he needs a haircut.
However, he is going with the trend of growing your hair out.
It drives me nuts! Which I think motivates him even more.
Our bunny hand prints and carrot foot prints
Time for the hunt!!
Lexie can't stop kissing him! I literally have to drag her off of him sometimes. SO MUCH LOVE!
She had to model her new sunglasses!
Sunday, March 10, 2013
Thoughts, realizations & confessions
When you have a special needs child
you are often told not to compare them to normal kiddos. It can be an endless battle with you being the
only one that suffers. I have to admit
with Lexie, I rarely ever did because I learned from Ethan and Gracie that kids
just develop at their own pace. Since
she was special, I just convinced myself that we would take whatever milestone
we could get. However, try having two special
needs kids with the same diagnosis! That can be tricky. I am constantly looking
at Eli and asking myself, was Lexie doing
more at this age, is he outdoing her or was this done at the same age??? I can feel myself slowly turning into a
psychotic mother. Well, to be honest I’ve
probably already been one for awhile now, but now it just may be getting
worse. I wonder if there is a shrink
around here that deals with psychotic mothers or do the police handle those
phone calls. Kidding!
Last night as I was doing my nightly
ritual of dunking pretzels in the Nutella jar, Eric walks by and says, “I don’t
know how you can do that. That stuff
isn’t good!” Seriously?!! He isn’t human. I bet he also hates puppies
and rainbows too. Although, the more that
I think about it, maybe it’s a good thing that I’m the only in this
relationship that has a sweet tooth. He has a beer tooth and I have a sweet
tooth. Perfect!
The jar of quarters that is supposed
to promote good behavior doesn’t seem to be working at our house anymore or I
should say it wasn’t working on the child that needed it the most. However, I think I’ve found something else
that is more effective. Earlier bed
times! Whenever I hear attitude or
downright rudeness, I move bedtime up in 5 minute increments. It's been working great so far. Fingers crossed that I will get through to
these kids. At least that’s what I tell myself when I lock myself in the pantry
to eat out of the Nutella jar. Sometimes
I think unless I hear gun, knife, or blood I can just chill in there for
awhile.
I’m hoping to go on a really nice
family vacation within the next two years, but for this year we’re going on a
nice low-key vacation to Myrtle Beach.
Plus, Eli is still so small that I want to wait till he’s older before we
go on any big vacations. I’ve been
searching for places that will work for everyone in our family. I am thinking
Beaches resort because it seems to accommodate special needs children quite
nicely or on a Disney Cruise which accommodates everyone. This momma needs a nice vacation and the
luxury of it being out of the US! If we were pajama rich, we would travel the
world. See all the wonders of the world
and eat all of the different types of food!
I need to buy a lottery ticket today…
For safety purposes we have had the
kids memorize their phone number and address.
It didn’t cross my mind that Ethan would hand out his phone number to
anyone who asked for it. The other night
I answered the phone and on the other line was this little girl’s voice asking
for Ethan. Me, not really knowing what to
say or do, handed the phone over to him.
He told me it was a classmate who asked for his number, but he didn’t
think she would call. I reminded Ethan that we are only friends with girls and
he agreed with blushing cheeks. The
funny thing is they barely talked to each other. They read stories to each other. If you are ever wondering how to get your son
to happily read a book, just have a pretty girl with a sweet voice call. I
thought my voice was sweet enough, but I was proved wrong!
People are judgmental. It’s a fact.
Whether it is how a person dresses, how they talk and even how much
money they make, we pass judgment. Lexie
isn’t judgmental. She doesn’t see race,
gender, or even class. She wants to hug
everyone and has no problem sharing her kisses.
In her eyes she is friends with everyone and isn’t shy about it. I envy her.
To feel that way must be freeing.
I will forever be grateful that I get to witness the world from two
different standpoints, mother of two perfectly healthy children and mother to two
special needs children. Best of both
worlds in my opinion. My children have been my greatest teachers. I hope we don’t screw them up.
I love when I see people singing in
their cars. It makes me happy that I’m not the only one. I really love it
when people start drumming on their steering wheel. Stopping at a stop light is like watching a
mini concert. It’s sad that I spend so much time in my car.
Having two sisters, I know the fine
art of bribery. I’ve just recently witnessed it happening
among my own children. Gracie turned to
Ethan and said, “I will give you the rest of my popcorn, but you have to do
whatever I say.” Ethan – “Fine, what do
you want?” Gracie-“Go clean my
room!” Me being the parent that
loves them both equally put a stop to it at once, but I couldn’t hide my smile.
Have you seen the movie Mean Girls? Yeah, I may be living in it about 10 years
from now.
Sometimes I feel bad for not painting
Lexie’s nails or for not getting her ears pierced or pretty much not doing all
of the things that Miss Gracie loves.
But, then I remember that I don’t know if Lexie is even a girly girl. She could be a tomboy! She
wears whatever I put on her, but I wish I knew more about her likes and
dislikes. Does she even like to wear
dresses? Does she even like pink? Does she want to wear baseball caps? Maybe one day I will figure it out. Hopefully, it’s not after I’ve given her a
complex.
I’m currently reading Les Miserables
and I usually love to pick out quotations that just stick with me. You know the ones that you have to read again because you love how it's worded. “At those hours especially when we have
sorest need of grasping the sharp realities of life do the threads of thought
snap off in the brain.” & “It is
with misery as with everything else. It gradually becomes endurable.”
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