This blog gives our family and friends a chance to be involved in our lives and watch our children grow. We have been blessed with four beautiful children; Ethan, Gracie, Lexie & Eli. Lexie and Eli were both born with Hydrocephalus. Siblings with Hydrocephalus is rare, yet not unheard of.
Ashe Background
Sunday, November 29, 2009
Christmas Extravaganza
Saturday, November 28, 2009
Gobble Gobble
Monday, November 16, 2009
Wednesday, November 11, 2009
Our little girl's update
Two weeks ago I had a Fetal MRI and yesterday we got the results. Despite her efforts on hiding from the technician, he was able to get the images that we needed. We always knew that Aqueductal Stenosis is the most common reason for hydrocephalus and yesterday our doctor confirmed that this seems to be the case for us. The easiest way I can explain this is that the 1st and 2nd ventricles in our brain pass fluid into the 3rd ventricle and in between the 3rd ventricle and 4th ventricle there is a straw like piece that is called the Aqueduct of Sylvius. This certain item doesn’t seem to be long enough which is causing the backup of fluid. Eric and I have been researching this and actually feel relieved that this wasn’t related to a stroke. We were also told that her cerebellum is present and is functioning properly. So, what we know now is that she has no spinal issues, no bleeding in her brain that could be due to pressure and everything in her brain looks present but just compressed a little. Therefore, yesterday was a pretty good day in our house but we have 12 more weeks to go…fingers crossed! Below is the ventricle measurement (fluid in mm) from when we found out to yesterday’s result. Just remember that anything after 10 is considered not normal/hydrocheplaus.
20 weeks- 14
23 weeks -24
26 weeks -24
28 weeks-24
I promise to keep you guys updated with any news that may come our way. I will be going in every two weeks for routine ultrasounds so we just continue to pray that the measurements either stay consistent or go down. Yet, if it goes up, it will not be the end of the world.